Wednesday morning I received a text message from another special needs mama after publishing this post. She thanked me for the encouragement and admitted she'd had a rough week. "This is HARD!" she wrote. "And I'm afraid to be real with anyone because that's not the Christian thing to be saying." Oh, how the enemy wants us to believe we have to keep silent about the hard stuff. I encouraged my friend to find one person she could be completely honest with. She needs that. I need Continue Reading
Every Special Needs Mama Should Know
Your kiddo is worth the fight. It's worth battling the insurance company to get the coverage your child needs. It's worth the miles you put on the minivan driving to and from therapy appointments. It's worth going round and round with the school district to make sure your child's IEP is being followed. It's worth the late nights you stay up with your nose in a book - not the one you'd like to read - but the one that makes you an expert on your child's disorder. It's worth the Continue Reading
Ten Things I Learned In January
1. A Band-Aid Will Fit In Jackson's Nostril We were sitting on the couch watching a movie when I noticed Jackson sniffing (a lot). I looked down at the finger where I'd just placed a Band-Aid and it was GONE! I tilted his head back and there blowing in the nostril breeze was the bandage. I tried to remain calm, but it was like wrestling a bag of snakes, trying to get my 45 pound kid to cooperate as I tried to pull the bandage out with tweezers. So I did what any sane mom would do. I called Continue Reading
Not All Therapists Are Created Equal
I was honored to write Jackson's speech therapist a letter of recommendation this week for an Apraxia training she's hoping to attend this summer. First, you know you have a great therapist when they want to learn and grow in the area that most affects your child. Second, writing the letter made me pause and reflect on how grateful we are for our therapists. Not all therapists are created equal! We've had our fair share and we've had a few doozies. But we've had a few that just Continue Reading
Uncovering The Gifts…
Last week Jackson hauled his tricycle from the garage to the kitchen. It was bitterly cold outside and my sensory seeker needed to let off some steam. I opened the gate between the kitchen and living room and let him loose. He peddled like a pro, riding throughout the house. And I stood there overcome with gratitude. Peddling a tricycle did not come easily for Jackson, but the motor plan finally stuck and nothing will stop him now. We're starting to realize that Apraxia affects more Continue Reading