I haven’t written for a really long time. I stopped telling our story. I allowed fear to paralyze me. I let online bullies silence me. But I shared my heart over on Facebook earlier this week - about this hard and holy journey we’re on - and someone spoke words of encouragement. They told me to keep sharing our story. It made me want to put words on a page again. Maybe nobody will read them; but maybe somebody needs them. "Your child has a very rare genetic disorder called 9p23. This disorder Continue Reading
October Writing Challenge #11 – Above
Above us the tornado sirens blared and the sound of hail stones landed with a thunk. But in our storm shelter we were safe. The sweet sound of my son's prayer drowned out the noise above us. It was the sweetest moment watching him ask God to protect us from the storm; to help him not be scared. Life is full of storms. Life can be scary and loud. Thankfully, all we have to do is look above - fix our eyes on Jesus - the one who calms all the storms. This morning during my Continue Reading
October Writing Challenge #8 – Complete
I have anxiety. I look back and realize I've dealt with it all my life, but my anxiety intensified after becoming the mama of a child with special needs. I worry about my kiddo a lot. I am 100% a helicopter mom. I'm currently trying to surrender a situation to God, but it's hard to give him complete control. Last night I was reading about God's sovereignty during my quiet time. I'm working through the Anxious Bible study by Scarlet Hiltibidal (highly recommend!) I was Continue Reading
October Writing Challenge #6 – Whole
Homeschool is about educating the whole child. I recently came across this graphic and it’s spot on. It’s taken me a long time to break out of the public school mold. I want more for Jackson than just mastering math facts and memorizing important dates in history. Homeschool allows us to meet Jackson’s unique needs. We work on math and reading each day, but it leaves time for the therapy appointments that are so important - speech, OT, horseback riding. We get to learn about science and Continue Reading
October Writing Challenge #5 – Patient
This vision is for a future time. It describes the end, and it will be fulfilled. If it seems slow in coming, wait patiently, for it will surely take place. It will not be delayed. (Habakkuk 2:3 NLT) This verse refers to the end times, but it spoke so deeply to me during the days we were waiting for Jackson to speak. I remember these words coming to mind as I watched my toddler struggle to utter a single sound during a speech therapy session. These words brought me Continue Reading